External Support Hub

Debt Support and Advice

Managing debt can be challenging, especially for families and individuals navigating the complexities of Long-Term Ventilation (LTV) care. This section provides access to trusted organisations offering free and confidential advice to help you regain financial control.

Key Debt Support Services
  1. StepChange Debt Charity
    Free, personalised debt advice and solutions tailored to your financial situation.
  2. National Debtline
    A free helpline offering independent and confidential advice on managing debt.
  3. MoneyHelper
    Government-backed guidance on debt, budgeting, and financial wellbeing.
  4. Citizens Advice
    Support for dealing with debt problems, including managing creditors and budgeting.
  5. Christians Against Poverty (CAP)
    Free debt counselling and practical support for families facing financial struggles.
  6. Turn2Us
    A charity providing access to financial support and grants for those in need.
  7. Shelter
    Specialist debt and housing advice, particularly for families at risk of homelessness.
  8. Debt Advice Foundation
    A charity offering free and confidential advice on personal debt problems.
  9. PayPlan
    Free debt advice and support with managing repayments.
  10. LEAP (Local Energy Advice Partnership)
    Support for families struggling with energy debts, helping to reduce financial pressures.
Education Support

Families with children on Long-Term Ventilation (LTV) may face challenges navigating the education system. This section provides resources and services to ensure children have access to the support they need to thrive in their learning environments.

Key Education Support Services
  1. IPSEA (Independent Provider of Special Education Advice)
    Free, legally-based advice and resources for families of children with special educational needs (SEN).
  2. SEND Local Offer
    Guidance on accessing local services and support for children with Special Educational Needs and Disabilities (SEND).You can find your local SEND office on the WellChild website.
  3. Contact
    Support for families of children with disabilities, including advice on education, healthcare, and benefits.
  4. Council for Disabled Children (CDC)
    Resources for families and professionals on children’s rights, education, and healthcare.
  5. Together for Short Lives Education Resources
    Practical guidance for ensuring children with complex medical needs receive appropriate education support.
  6. National Autistic Society (NAS)
    Support for children and families navigating education with autism or additional needs.
  7. The Education Hub (Department for Education)
    Official advice and updates from the Department for Education on school policies and resources.
  8. YoungMinds
    Mental health resources to support children navigating school life while managing medical conditions.
  9. Family Fund
    Provides grants for families raising disabled or seriously ill children, including educational tools and equipment.
  10. Coram Children’s Legal Centre (Education Rights)
    Legal advice for parents regarding school placements, education plans, and disputes.
Employment Support

Balancing employment with the demands of Long-Term Ventilation (LTV) care can be challenging for families and individuals. This section provides access to services and resources that can help with employment rights, workplace adjustments, and financial support for working carers.

Key Employment Support Services
  1. ACAS (Advisory, Conciliation and Arbitration Service)
    Offers free and impartial advice on employment rights, workplace disputes, and flexible working.
  2. Carers UK Employment Support
    Guidance for working carers, including advice on employment rights and managing work-life balance.
  3. GOV.UK Flexible Working and Employment Rights
    Information on requesting flexible working arrangements and employment rights for carers.
  4. Access to Work (GOV.UK)
    Provides financial support and workplace adjustments for individuals with health conditions or disabilities.
  5. Working Families
    Advice on family-friendly working policies, parental leave, and employment rights for carers.
  6. Scope Employment Services
    Support for disabled individuals and carers seeking employment or workplace accommodations.
  7. Turn2Us Employment Resources
    Practical advice and information on financial support for working families.
  8. Citizens Advice Work and Employment
    Free advice on workplace rights, resolving disputes, and applying for benefits as a working carer.
  9. Jobcentre Plus
    Offers support for finding employment, accessing training, and financial assistance for carers.
  10. The Equality and Human Rights Commission (EHRC)
    Information on discrimination laws and ensuring equality in the workplace.
Financial Support

Managing finances while caring for someone on Long-Term Ventilation (LTV) can be challenging. This section highlights resources to help with budgeting, grants, and understanding benefits and entitlements.

Key Financial Support Services
  1. Turn2Us
    Access grants and financial support tailored to your needs.
  2. MoneyHelper
    Guidance on budgeting, debt management, and financial planning.
  3. Citizens Advice Financial Help
    Free advice on managing money and accessing benefits.
  4. Family Fund
    Grants to support families raising disabled or seriously ill children.
  5. Together for Short Lives Financial Guidance
    Resources for financial entitlements and support for complex health needs.
  6. GOV.UK Benefits and Financial Help
    Comprehensive information on benefits and financial aid in the UK.
  7. The Elifar Foundation
    Financial grants for equipment and services to enhance the quality of life for children with severe disabilities. 
  8. Caudwell Children
    Offers financial support and grants for therapy, equipment, and other essential needs for children with complex health needs.
  9. Scope Disability Grants and Funding
    Provides financial resources and advice for disabled children and their families.
Immigration Help and Resources

This section provides trusted resources to support families and patients on Long-Term Ventilation (LTV) with immigration needs. Whether you are seeking legal advice, support services, or general guidance, these resources are tailored to help navigate the complexities of the immigration process.

Key Support Services
  1. UK Visas and Immigration (UKVI)
    Official guidance on visa applications, citizenship, and immigration.
  2. Citizens Advice
    Free, impartial advice on immigration and visas.
  3. Immigration Law Practitioners’ Association (ILPA)
    Directory of qualified immigration lawyers and legal resources.
  4. Refugee Council
    Support for asylum seekers and refugees with immigration challenges.
  5. Joint Council for the Welfare of Immigrants (JCWI)
    Advocacy and legal advice for immigration issues.
  6. Right to Remain
    Practical information and guidance for navigating the immigration system.
  7. Migrant Help
    Advice and support for asylum seekers, refugees, and victims of modern slavery.
  8. Asylum Support Appeals Project (ASAP)
    Legal representation for asylum support appeals.
  9. Children’s Legal Centre (Coram)
    Immigration advice and resources for children and young people.
  10. LawWorks
    Pro bono legal services, including immigration advice.
  11. Shelter
    Housing and legal advice for immigrants facing housing issues.
  12. Together for Short Lives
    Support for families of children with complex medical needs and immigration concerns.
  13. Freedom from Torture
    Therapy and immigration advice for individuals who have fled torture.
  14. Immigration Advisory Service (IAS)
    Tailored legal advice and representation for immigration matters.
Legal Support

Families and patients on Long-Term Ventilation (LTV) may require legal advice for navigating complex situations such as healthcare rights, housing issues, immigration, or financial entitlements. This section provides trusted resources for legal guidance and support.

Key Legal Support Services
  1. Citizens Advice Legal Help
    Free and confidential advice on legal matters, including housing, employment, and family law.
  2. LawWorks
    Pro bono legal advice and representation for individuals and families unable to afford private legal services.
  3. Coram Children’s Legal Centre
    Free legal advice and information for families and children, including healthcare rights and education law.
  4. Equality Advisory and Support Service (EASS)
    Guidance on discrimination law and how to address unfair treatment.
  5. The Legal Aid Agency (GOV.UK)
    Information on eligibility for legal aid and how to apply for free or subsidised legal representation.
  6. Shelter Legal Advice
    Specialist advice on housing and homelessness, particularly for vulnerable families.
  7. Joint Council for the Welfare of Immigrants (JCWI)
    Legal advice and advocacy for families facing immigration issues.
  8. Disability Law Service
    Free legal advice on issues relating to disability, including healthcare and employment rights.
  9. Advicenow
    Clear and accessible guides to help you understand legal processes and your rights.
  10. Together for Short Lives Legal Support
    Resources for families navigating complex legal issues related to caring for children with medical needs.
Relationship and Family Support

Caring for someone on Long-Term Ventilation (LTV) can place unique demands on family relationships and dynamics. This section provides resources to help families navigate challenges, strengthen relationships, and access tailored support.

 

Key Relationship and Family Support Services
  1. Relate
    Offers counselling for families, couples, and individuals to improve communication and resolve conflicts.
  2. Together for Short Lives Sibling Support
    Resources specifically designed to support siblings of children with complex health needs.
  3. Carers UK Family Resources
    Guidance and advice for families balancing caregiving and relationships.
  4. Family Lives
    Offers a helpline, forums, and resources to support parenting and family dynamics.
  5. YoungMinds Parent Helpline
    Support for parents concerned about their children’s mental health and well-being.
  6. Contact Parent Support
    Practical advice and emotional support for parents of children with disabilities.
  7. The Compassionate Friends
    Peer support for families coping with bereavement or challenges related to caregiving.
  8. Parenting for Lifelong Health
    Evidence-based parenting programs and resources to strengthen family relationships.

For more comprehensive support options, download our Charity e-book, which includes additional resources for families and carers navigating complex dynamics.

Emotional and Practical Support

Caring for someone on Long-Term Ventilation (LTV) can be emotionally and physically challenging. This section provides resources and services that offer practical help, peer support, and emotional well-being resources for families and patients.

Key Emotional and Practical Support Services
    1. Together for Short Lives
      Offers emotional support, practical guidance, and peer networks for families of children with complex medical needs.
    2. WellChild
      Practical and emotional support for families caring for children with serious health needs, including home adaptations and peer connections.
    3. Rainbow Trust
      Provides emotional and practical support to families of children with life-threatening or terminal conditions.
    4. Carers UK
      Support for carers, including advice on well-being, forums, and community connections.
    5. Mind
      Mental health support and resources for managing stress, anxiety, and emotional challenges.
    6. The Samaritans
      A confidential helpline offering emotional support for anyone feeling overwhelmed.
    7. Scope
      Provides emotional and practical support for disabled people and their families, offering advice on benefits, employment, and independent living.
    8. Contact
      Practical and emotional support for families raising children with disabilities.
    9. YoungMinds
      Emotional well-being resources for children and young people, including those managing medical conditions.
    10. NHS Every Mind Matters
      Tools and advice for maintaining emotional well-being and coping with stress.

    For a more extensive directory of support services, download our Charity e-book, which includes further resources for families and carers.

Social Care Support

Social care services can provide essential help for individuals and families managing the challenges of Long-Term Ventilation (LTV). This section offers resources to understand your rights, access assessments, and receive the support you need.

Key Social Care Support Services
  1. Local Authority Social Services
    Contact your local council to request a care needs assessment or access services such as respite care and home adaptations.
  2. Care Quality Commission (CQC)
    Information on regulated care providers to ensure safe, high-quality support for individuals and families.
  3. Carers UK
    Advice for carers, including how to access respite care, financial support, and advocacy services.
  4. NHS Continuing Healthcare (CHC)
    Information on NHS-funded care for individuals with significant ongoing health needs.
  5. Contact
    Guidance for parents of children with disabilities, including accessing social care services.
  6. Together for Short Lives Social Care Guide
    Support for families navigating social care services for children with complex medical needs.
  7. The Disabled Living Foundation (DLF)
    Advice on aids, equipment, and home adaptations to improve daily living.
  8. Family Fund
    Financial support for families raising children with serious health conditions to cover care-related costs.

 

 

 

Utilities Support

Managing utility costs can be particularly challenging for families and individuals with Long-Term Ventilation (LTV) needs. This section provides access to resources and services that can help with energy, water, and other utility-related costs.

Key Utility Support Services
  1. Energy Saving Trust
    Practical advice on reducing energy consumption and accessing grants to make your home more energy-efficient.
  2. Priority Services Register (PSR)
    A free support service for those who may need additional help with energy supply, including individuals with medical needs.
  3. National Energy Action (NEA)
    Support and resources for reducing energy bills and improving energy efficiency.
  4. LEAP (Local Energy Advice Partnership)
    Free advice and support for energy savings, debt reduction, and accessing grants for families in need.
  5. Turn2Us Energy Schemes
    Information on available grants and funding to help with utility bills.
  6. WaterSure
    A scheme offering capped water bills for eligible households, including those with high medical water usage.
  7. Warm Home Discount Scheme
    A government scheme providing discounts on energy bills for eligible households.
  8. Fuel Bank Foundation
    Emergency help for families at risk of disconnection from energy supplies.
  9. Citizens Advice Energy Advice
    Free support with energy-related problems, including billing and switching suppliers.
  10. Together for Short Lives Energy Support
    Resources tailored for families of children with complex medical needs to manage energy costs.

 

 

 

External Support Hub

Education Support

Families with children on Long-Term Ventilation (LTV) may face challenges navigating the education system. This section provides resources and services to ensure children have access to the support they need to thrive in their learning environments.

Key Education Support Services
  1. IPSEA (Independent Provider of Special Education Advice)
    Free, legally-based advice and resources for families of children with special educational needs (SEN).
  2. SEND Local Offer
    Guidance on accessing local services and support for children with Special Educational Needs and Disabilities (SEND).You can find your local SEND office on the WellChild website.
  3. Contact
    Support for families of children with disabilities, including advice on education, healthcare, and benefits.
  4. Council for Disabled Children (CDC)
    Resources for families and professionals on children’s rights, education, and healthcare.
  5. Together for Short Lives Education Resources
    Practical guidance for ensuring children with complex medical needs receive appropriate education support.
  6. National Autistic Society (NAS)
    Support for children and families navigating education with autism or additional needs.
  7. The Education Hub (Department for Education)
    Official advice and updates from the Department for Education on school policies and resources.
  8. YoungMinds
    Mental health resources to support children navigating school life while managing medical conditions.
  9. Family Fund
    Provides grants for families raising disabled or seriously ill children, including educational tools and equipment.
  10. Coram Children’s Legal Centre (Education Rights)
    Legal advice for parents regarding school placements, education plans, and disputes.
Debt Support and Advice

Managing debt can be challenging, especially for families and individuals navigating the complexities of Long-Term Ventilation (LTV) care. This section provides access to trusted organisations offering free and confidential advice to help you regain financial control.

Key Debt Support Services
  1. StepChange Debt Charity
    Free, personalised debt advice and solutions tailored to your financial situation.
  2. National Debtline
    A free helpline offering independent and confidential advice on managing debt.
  3. MoneyHelper
    Government-backed guidance on debt, budgeting, and financial wellbeing.
  4. Citizens Advice
    Support for dealing with debt problems, including managing creditors and budgeting.
  5. Christians Against Poverty (CAP)
    Free debt counselling and practical support for families facing financial struggles.
  6. Turn2Us
    A charity providing access to financial support and grants for those in need.
  7. Shelter
    Specialist debt and housing advice, particularly for families at risk of homelessness.
  8. Debt Advice Foundation
    A charity offering free and confidential advice on personal debt problems.
  9. PayPlan
    Free debt advice and support with managing repayments.
  10. LEAP (Local Energy Advice Partnership)
    Support for families struggling with energy debts, helping to reduce financial pressures.
Financial Support

Managing finances while caring for someone on Long-Term Ventilation (LTV) can be challenging. This section highlights resources to help with budgeting, grants, and understanding benefits and entitlements.

Key Financial Support Services
  1. Turn2Us
    Access grants and financial support tailored to your needs.
  2. MoneyHelper
    Guidance on budgeting, debt management, and financial planning.
  3. Citizens Advice Financial Help
    Free advice on managing money and accessing benefits.
  4. Family Fund
    Grants to support families raising disabled or seriously ill children.
  5. Together for Short Lives Financial Guidance
    Resources for financial entitlements and support for complex health needs.
  6. GOV.UK Benefits and Financial Help
    Comprehensive information on benefits and financial aid in the UK.
  7. The Elifar Foundation
    Financial grants for equipment and services to enhance the quality of life for children with severe disabilities. 
  8. Caudwell Children
    Offers financial support and grants for therapy, equipment, and other essential needs for children with complex health needs.
  9. Scope Disability Grants and Funding
    Provides financial resources and advice for disabled children and their families.
Employment Support

Balancing employment with the demands of Long-Term Ventilation (LTV) care can be challenging for families and individuals. This section provides access to services and resources that can help with employment rights, workplace adjustments, and financial support for working carers.

Key Employment Support Services
  1. ACAS (Advisory, Conciliation and Arbitration Service)
    Offers free and impartial advice on employment rights, workplace disputes, and flexible working.
  2. Carers UK Employment Support
    Guidance for working carers, including advice on employment rights and managing work-life balance.
  3. GOV.UK Flexible Working and Employment Rights
    Information on requesting flexible working arrangements and employment rights for carers.
  4. Access to Work (GOV.UK)
    Provides financial support and workplace adjustments for individuals with health conditions or disabilities.
  5. Working Families
    Advice on family-friendly working policies, parental leave, and employment rights for carers.
  6. Scope Employment Services
    Support for disabled individuals and carers seeking employment or workplace accommodations.
  7. Turn2Us Employment Resources
    Practical advice and information on financial support for working families.
  8. Citizens Advice Work and Employment
    Free advice on workplace rights, resolving disputes, and applying for benefits as a working carer.
  9. Jobcentre Plus
    Offers support for finding employment, accessing training, and financial assistance for carers.
  10. The Equality and Human Rights Commission (EHRC)
    Information on discrimination laws and ensuring equality in the workplace.
Immigration Help and Resources

This section provides trusted resources to support families and patients on Long-Term Ventilation (LTV) with immigration needs. Whether you are seeking legal advice, support services, or general guidance, these resources are tailored to help navigate the complexities of the immigration process.

Key Support Services
  1. UK Visas and Immigration (UKVI)
    Official guidance on visa applications, citizenship, and immigration.
  2. Citizens Advice
    Free, impartial advice on immigration and visas.
  3. Immigration Law Practitioners’ Association (ILPA)
    Directory of qualified immigration lawyers and legal resources.
  4. Refugee Council
    Support for asylum seekers and refugees with immigration challenges.
  5. Joint Council for the Welfare of Immigrants (JCWI)
    Advocacy and legal advice for immigration issues.
  6. Right to Remain
    Practical information and guidance for navigating the immigration system.
  7. Migrant Help
    Advice and support for asylum seekers, refugees, and victims of modern slavery.
  8. Asylum Support Appeals Project (ASAP)
    Legal representation for asylum support appeals.
  9. Children’s Legal Centre (Coram)
    Immigration advice and resources for children and young people.
  10. LawWorks
    Pro bono legal services, including immigration advice.
  11. Shelter
    Housing and legal advice for immigrants facing housing issues.
  12. Together for Short Lives
    Support for families of children with complex medical needs and immigration concerns.
  13. Freedom from Torture
    Therapy and immigration advice for individuals who have fled torture.
  14. Immigration Advisory Service (IAS)
    Tailored legal advice and representation for immigration matters.
Legal Support

Families and patients on Long-Term Ventilation (LTV) may require legal advice for navigating complex situations such as healthcare rights, housing issues, immigration, or financial entitlements. This section provides trusted resources for legal guidance and support.

Key Legal Support Services
  1. Citizens Advice Legal Help
    Free and confidential advice on legal matters, including housing, employment, and family law.
  2. LawWorks
    Pro bono legal advice and representation for individuals and families unable to afford private legal services.
  3. Coram Children’s Legal Centre
    Free legal advice and information for families and children, including healthcare rights and education law.
  4. Equality Advisory and Support Service (EASS)
    Guidance on discrimination law and how to address unfair treatment.
  5. The Legal Aid Agency (GOV.UK)
    Information on eligibility for legal aid and how to apply for free or subsidised legal representation.
  6. Shelter Legal Advice
    Specialist advice on housing and homelessness, particularly for vulnerable families.
  7. Joint Council for the Welfare of Immigrants (JCWI)
    Legal advice and advocacy for families facing immigration issues.
  8. Disability Law Service
    Free legal advice on issues relating to disability, including healthcare and employment rights.
  9. Advicenow
    Clear and accessible guides to help you understand legal processes and your rights.
  10. Together for Short Lives Legal Support
    Resources for families navigating complex legal issues related to caring for children with medical needs.
Relationship and Family Support

Caring for someone on Long-Term Ventilation (LTV) can place unique demands on family relationships and dynamics. This section provides resources to help families navigate challenges, strengthen relationships, and access tailored support.

 

Key Relationship and Family Support Services
  1. Relate
    Offers counselling for families, couples, and individuals to improve communication and resolve conflicts.
  2. Together for Short Lives Sibling Support
    Resources specifically designed to support siblings of children with complex health needs.
  3. Carers UK Family Resources
    Guidance and advice for families balancing caregiving and relationships.
  4. Family Lives
    Offers a helpline, forums, and resources to support parenting and family dynamics.
  5. YoungMinds Parent Helpline
    Support for parents concerned about their children’s mental health and well-being.
  6. Contact Parent Support
    Practical advice and emotional support for parents of children with disabilities.
  7. The Compassionate Friends
    Peer support for families coping with bereavement or challenges related to caregiving.
  8. Parenting for Lifelong Health
    Evidence-based parenting programs and resources to strengthen family relationships.

For more comprehensive support options, download our Charity e-book, which includes additional resources for families and carers navigating complex dynamics.

Emotional and Practical Support

Caring for someone on Long-Term Ventilation (LTV) can be emotionally and physically challenging. This section provides resources and services that offer practical help, peer support, and emotional well-being resources for families and patients.

Key Emotional and Practical Support Services
    1. Together for Short Lives
      Offers emotional support, practical guidance, and peer networks for families of children with complex medical needs.
    2. WellChild
      Practical and emotional support for families caring for children with serious health needs, including home adaptations and peer connections.
    3. Rainbow Trust
      Provides emotional and practical support to families of children with life-threatening or terminal conditions.
    4. Carers UK
      Support for carers, including advice on well-being, forums, and community connections.
    5. Mind
      Mental health support and resources for managing stress, anxiety, and emotional challenges.
    6. The Samaritans
      A confidential helpline offering emotional support for anyone feeling overwhelmed.
    7. Contact
      Practical and emotional support for families raising children with disabilities.
    8. YoungMinds
      Emotional well-being resources for children and young people, including those managing medical conditions.
    9. NHS Every Mind Matters
      Tools and advice for maintaining emotional well-being and coping with stress.

    For a more extensive directory of support services, download our Charity e-book, which includes further resources for families and carers.

Utilities Support

Managing utility costs can be particularly challenging for families and individuals with Long-Term Ventilation (LTV) needs. This section provides access to resources and services that can help with energy, water, and other utility-related costs.

Key Utility Support Services
  1. Energy Saving Trust
    Practical advice on reducing energy consumption and accessing grants to make your home more energy-efficient.
  2. Priority Services Register (PSR)
    A free support service for those who may need additional help with energy supply, including individuals with medical needs.
  3. National Energy Action (NEA)
    Support and resources for reducing energy bills and improving energy efficiency.
  4. LEAP (Local Energy Advice Partnership)
    Free advice and support for energy savings, debt reduction, and accessing grants for families in need.
  5. Turn2Us Energy Schemes
    Information on available grants and funding to help with utility bills.
  6. WaterSure
    A scheme offering capped water bills for eligible households, including those with high medical water usage.
  7. Warm Home Discount Scheme
    A government scheme providing discounts on energy bills for eligible households.
  8. Fuel Bank Foundation
    Emergency help for families at risk of disconnection from energy supplies.
  9. Citizens Advice Energy Advice
    Free support with energy-related problems, including billing and switching suppliers.
  10. Together for Short Lives Energy Support
    Resources tailored for families of children with complex medical needs to manage energy costs.

 

 

 

Social Care Support

Social care services can provide essential help for individuals and families managing the challenges of Long-Term Ventilation (LTV). This section offers resources to understand your rights, access assessments, and receive the support you need.

Key Social Care Support Services
  1. Local Authority Social Services
    Contact your local council to request a care needs assessment or access services such as respite care and home adaptations.
  2. Care Quality Commission (CQC)
    Information on regulated care providers to ensure safe, high-quality support for individuals and families.
  3. Carers UK
    Advice for carers, including how to access respite care, financial support, and advocacy services.
  4. NHS Continuing Healthcare (CHC)
    Information on NHS-funded care for individuals with significant ongoing health needs.
  5. Contact
    Guidance for parents of children with disabilities, including accessing social care services.
  6. Together for Short Lives Social Care Guide
    Support for families navigating social care services for children with complex medical needs.
  7. The Disabled Living Foundation (DLF)
    Advice on aids, equipment, and home adaptations to improve daily living.
  8. Family Fund
    Financial support for families raising children with serious health conditions to cover care-related costs.