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Pan Thames PaediatricĀ Long Term Ventilation Network

 

We are a partnership between providers, commissioners and patients, who work together to optimise healthcare for babies, children and young people on LTV across London, Kent and Medway, Surrey Heartlands, Sussex and the bordering East of England Trusts.

Our mission is to transform service delivery of paediatric LTV (Tracheostomy and Non Invasive Ventilation) to reduce the time babies, children and young people on LTV spend in hospital and to maximise high-quality care and time at home.

This is achieved through:

  • Standardising and supporting delivery of training & education
  • Providing a welfare advice service to address housing and benefit requirements
  • Deliver improvements in care, utilisation of beds, access to services and access to equipment for families

Our programme focuses on four goals:

  1. Good quality data
  2. Better care closer to home
  3. Better and equitable access to services where capacity is challenged
  4. Smarter use of high cost technology and highly skilled resources

Info for Healthcare Professionals

Educational Links

Our education and training service provides specialist expertise and help to make care in the community as safe as possible. It is designed to improve the knowledge and confidence of professionals and parents caring for children on long-term ventilation. As well as supporting in creating a standardised approach to care received by children who require long term ventilation.

Info to Support Parents and Carers

These resources are intended for use by healthcare professionals only. Parents and carers should contact their managing centres for support

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